The last couple of years have seen some friends diagnosed with cancer. Through these strong women I became aware of patient blogging. It seems that most cancer centers have online diaries for their patients, so they can share updates, thoughts, and feelings with a wide circle of family and friends.
When I saw patient blogging on the Science Online wiki, I knew I had to help out and learn more. If patient blogging is helpful, maybe I need to incorporate this activity into my practice! Who besides cancer patients blog? What else is going online?
Some bloggers show an activist flare and actually change treatment and attitudes toward their disorders. Nancy Shute lined up Dave deBronkart, aka e-patient Dave, who testified before Congress and is a huge force in patient empowerment online. After a diagnosis of advanced-stage kidney cancer, he got the care that saved his life by blogging and interacting with other patients over the internet.
Some bloggers write to endure their treatment. David S, a resident of Raleigh-Durham, will join us to discuss his blog. His often posts from his dialysis treatments (I'm a nephrologist; I had to get my organ in there), and he needs a kidney transplant.
This should be a great session to show us how interested laypeople (non-scientists, non-doctors, non-journalists) use blogs in health. Join us at 2pm on Saturday, January 15, in Room E.
Note: This blog will be on hiatus for the coming weekend. We are moving my daughter to a new city for her first real job!