Chronic disease includes periods of relative “health” and intervals of exacerbation. The health problems my spouse and I suffered, until recently, meant taking some medications and monitoring parameters. We always had to remember our limits, like a tickle in the back of our minds, but otherwise life felt normal.
This brain tumor has other ideas. Since March 1, my spouse has spent 7 nights at home. Today I fetched him home again, following a procedure that I hope will keep him out of the hospital for a nice long while.
As hopeful as I am, I know that we are highly likely to achieve inpatient status again in the near future. It’s the nature of the beast for now. I do have new empathy for my patients and their families, especially when an acute illness means ruining a vacation or birthday or other event.
Good luck to everyone dealing with chronic disease. Even if you are in the relatively healthy, silent phase, you still have to be wary.